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Archive for the ‘Best Practices’

Linda’s Protocol

October 13, 2013 By: kajay Category: Best Practices, Linda (Lindag), Members' Best Practices, Tips



1. Sprayed the house (walls, floors, surfaces of tables) many times with Windex and/or ammonia water
2. Disposed of a lot (most) of furniture to dump, including all rugs – 2 trailer loads to dump including new couches, new bed, dressers, almost everything
3. Removed carpeting downstairs (we are in a 2 level condo) and left floors for 1 year as bare concrete, meanwhile mopping, vacuuming, spraying all floors and walls while empty.
4. Had PCOs come spray inside of house on many occasions (a waste of $)
5. Put down DE at various times all over the floors, in bookcases
6. Mopped all floors upstairs on hardwood with ammonia water (ruined floors)
7. Used bug bombs in house on many occasions
8. Sprayed a pesticide around all cracks near baseboards (from Walmart) every 6 months.
9. Bought fogger and fogged with Cedarcide entire house + attic.
10. Purchased a Singer steam press and steam pressed all clothing for at least a year, blankets, sheets, everything and stored in plastic zip lock bags. Used plastic bag for purse.
11. Purchased and used a dehumidifier and ran that steadily for 6 months straight.
12. Constant cleaning and vacuuming (daily, upstairs and downstairs)
13. Changed sheets daily
14. Used a swiffer mop and mopped our air mattress with a combo spray of alcohol and white vinegar
15. Slept on air mattresses for a year or longer.
16. Moved out of our bedroom downstairs and bought bed frame (wood) from Ikea and put air mattress on that. Slept with sheets, and 1 blanket all year.
17. Removed all knick knacks, any clutter from entire house. I took to dump or put in large plastic bins to store.
18. Purchased cheap shoes and clothing and tossed frequently.
19. Kept all shoes outside after spraying with Windex
20. Had inside of computer cleaned out by Fry’s electronics; replaced keyboard on several occasions.
21. Purchased good microscope to look at debris from body.
22. Removed furnace and A/C which was original to house and installed new (mold throughout A/C system).
23. Repainted entire house inside (this summer)


There is probably more. We lived in constant prayer… stayed away from family and friends for a year. They were told what we were fighting. That was just for the external environment…




1. Got diagnosis of Lyme/Bartonella/Babesia, and Morgellons from LLMD and started treatment in 2009. Started treating all three diseases (not gone, of course).
2. Occasional bathing and soaking with essential oils
3. Attacking itching in scalp with combo oils of tea tree oil, eucalyptus oil, and oregano oil after showering, leaving that in regardless of smell to others
4. Cut hair very short, boy cut
5. Used hair blower after showers and using hottest setting (I always do this)
6. Used various fungal shampoos… and tea tree oil shampoos on body and hair
7. Used scrubber cloths from Walmart to do a hard scrub all over body
8. Realized I needed to work on increasing my immune support to get body into a healthier place… a work in progress
9. Used Aquaphor on skin when itching was the worst and helps to get a healthy skin barrier back after all the external remedies
10. Used man products that were supposed to kill pathogens on skin
11. Came to realization that much of what I have had became internal so working from an internal point and not just on the outer…
12. Used Vicks for 1st year around nose, eyes, mouth to keep these things out of my orifaces.
13. Did colon cleanses for many months (they go into the rectum, penis, vagina)… recommended by Dr. Staninger to me
14. Working on my spirituality (this should not be listed last) and is ongoing.

These entities are not all gone, but the load is much much lower… I manage these various expressions of this disease process now. Strangely during the change of seasons things are very quiet and I have very few symptoms right now, although struggling with change of drugs for sleep, Lyme, Bartonella, and high blood pressure.

I see fewer fibers 5-1/2 years later, and fewer strange floating things in the house with cooler weather. I am of the opinion that some of these symptoms are due to Lyme/ Bartonella & Babesia as well as newly discovered Fry protozoa parasite FL1953 which is a great imitator of Bartonella symptoms. Also believe that chemtrail materials are affecting all of us, including all living matter on the planet… (Carnicom).

Bill’s Protocols

April 13, 2013 By: kajay Category: Best Practices, Members' Best Practices, Tips


Body: MSM, Borax

Bath: Arm and Hammer Powdered Laundry Detergent

Scalp: Arm and HammerPowdered Laundry Detergent, Coconut oil


============ BODY

  • 1 Tsp MSM Powder
  • 32 Oz Water
  • 2 Tbsp Borax

Apply all over if I get sick of the peroxide mixture

MSM is sold in capsules. I open capsules, mix with the other ingredients above, pour over head and leave on till next shower.

Note:  MSM and Hydrogen Peroxide are both penetrants. That is, they help anything mixed with them penetrate the skin.

============ BATH

  • 1 C. Arm and Hammer powdered laundry detergent
  • Pour in tub and soak for 30 minutes. Helps a lot. Many folks have been cured just doing this.

============ SHAMPOO

  • 2 to 3 Tbsp Arm and Hammer powdered laundry detergent
  • 32 Oz Water
  • Shampoo. Repeat 3 times a week for several weeks. This kills them on the scalp.

============ CONDITIONER

  • 2 Tbsp Coconut Oil

Add to bath and dunk head. Restores moisture and makes hair look brand new.

Bill says, “I did this and all crawling has stopped for 3 to 5 years now. Praise God ! I prayed so hard for that to stop.”

Carolyn’s Protocol

April 10, 2013 By: kajay Category: Best Practices, Carolyn, Members' Best Practices, Protocols, Tips

Bottom line up front:

Body: Sulfur

Enviro: Clorox, Borax

Laundry: Tide, Borax

Skin: Sulfur, Olive Oil, Vicks Vapo Rub

Scalp: Sulfur 8, Selsun Blue Menthol


#3 Carolyn (still in progress)
Possible scabies infestation (animal/human?) 80 percent cured


  • Sulfur lotion/cream
  • Sulfur soap
  • Sulfur 8 shampoo and alternate with Selsun Blue shampoo menthol
  • Arm and Hammer Laundry detergent
  • Borax
  • Tide
  • Apple cider vinegar
  • Olive oil (skin at night)
  • Vicks (face at night)
  • Satin sheets and pillow case
  • Clorox Bleach
  • Clorox bleach spray
  • Clorox disinfectant wipes


  • Washed and dried hot all clothing and bedding daily in Borax and Tide.
  • Washed and dried coats every other day
  • Steam pressed all clothing and blanket
  • Sprinkle Arm and Hammer baking soda in shoes
  • Wash floors with Borax and water
  • Sprayed and cleaned furniture, counter tops, and door knobs with Clorox Bleach spray
  • Used Clorox wipes on keyboard, cell phone, mouse, remotes, etc
  • Cleaned bathroom with Clorox bleach spray
  • Tossed couch out, bought futon
  • Vacuumed bedroom daily
  • Steam clean carpet daily with Borax and water


Cheryl’s Protocol

April 10, 2013 By: kajay Category: Best Practices, Cheryl, Protocols, Tips

Bottom line up front:

All: Prayer

Enviro: Diatomaceous Earth (DE)

Internal: Ivermectin


Scalp: Sulphur products

Skin: Sulphur products, Vicks Vapo Rub

Misc: Epsom Salts, Sea Salt, Vinegar


  • Pray.
  • Boil clothes before laundering.
  • Use diatomaceous earth (DE).
  • Use epsom salts.
  • Use sea salt.
  • Use vinegar.
  • Use All Stop Medicated skin cream loaded with sulfur.
  • Use any type of sulfur products shampoo soap etc.
  • Use Sulpher 8 ointment for the scalp.
  • Use Vicks Vapo-Rub on face at night for sleeping.
  • Use Ivermectin.
  • Get rid of toe fungal infection with antifungal meds.
  • Cry a lot.

Cecelia’s Protocol

April 09, 2013 By: kajay Category: Best Practices, Cecelia, Members' Best Practices, Tips

Bottom line up front

Enviro: Diatomaceous earth, IGR, Pestene Powder, Steam press, Vacuum

Laundry: Borax, Ammonia

Skin: Sulphur soap


  • Puff diatomaceous earth into all cracks and crevices and around floor boards.
  • Spray with IGR (did 3 times).
  • Use Pestene powder from Australia along floor boards.
  • Use borax and ammonia in the laundry and dry tumble at hottest temp.
  • Steam press all clothes.
  • Change bed linens and clothes every day.
  • Used sulphur soap.
  • Move and take nothing to the new place–not even cars.
  • Vacuum every day.

Knockdowns for Enviro Spray

April 09, 2013 By: kajay Category: Best Practices, Tips

The Pine Sol is a pretty darn good knockdown but like all resin based products, it lasts only until the smell lasts. And I do not use it every time, only when I am responding to a problem. Normally my choice is TweetMint.

Of course, any product that relies on an evergreen plant resin, such as cedar or eucalyptus or pine, is 1) good till the smell is gone (though the smell will be potent for a microorganism longer than for a human) and 2) will coat the lungs cumulatively. When spraying an evergreen cedar product as a knockdown, you would need a respirator.

The Lime Away is not the most healthy of products for humans either, that is why I specified the tiny amount that I use, which is what is the heavyweight in my mop mixture, that is, what makes it work for more than a week. Be careful not to use more, and ideally, turn on your bathroom or kitchen vent fan when you finish (not before as that would suck the chemical right into your lungs since you will be between the fan and the chemical).

Sigh. This stuff is complicated, isn’t it? But we will prevail!

Lindag’s Protocol

October 23, 2012 By: kajay Category: Best Practices, Linda (Lindag), Meds, Members' Best Practices, Tips

Bottom line up front

Internal: Clarithromycin, Doxycycline, Rifampin, Ciprofloxacin, Nattokinase, Interfase, Itraconazole*


Lindag reports that her LLMD has reshaped her treatment plan as follows. As always, remember, this is NOT medical advice. Do not try to construct and implement your own medical plan. It is vital for your LIFE that you involve a knowledgeable medical doctor. These are drugs and many have dangerous potential side effects. Remember: you must decide to outlive the bastards.

In addition to seeking medical advice before taking any of these medications, I also suggest that if you have not already identified several support groups online, that you do so now. You do not have to participate in them all. However, if you join them you will receive their emails.

As for the groups, many states have Lyme Yahoo groups and there are several whose scopes are not limited by state of residence. Join all of them you can and figure out what each specializes in. The best way to do this is to read the documentation they provide when you join. If they provide none, then read the group’s home page message and recent posts, and look to see if the groups have files and links posted. If you want the most benefit from each group, doing a little homework before jumping in goes a long way toward opening that door.

  • Mycoplasma – Clarithromycin
  • Bartonella – Doxy & Rifampin start again, add in Cipro
  • Biofilm – Nattokinase and Interfase


  • Itraconazole
  • Formerly on Diflucan–didn’t seem to do much, but it is supposed to attack Lyme.
  • She said to stop Bicillin for now.
  • Just finished 10 days of Metronidazole (Flagyl).
  • If things don’t improve she will add Ivermectin (I’ve been on before) for FL1953.

* Here is a little info on each of these. For more info, click the name.

Doxycycline Rifampin Ciprofloxacin Nattokinase Interfase
A macrolide antibiotic used to treat mycoplasma; pneumonia; bronchitis; ear, sinus, skin, and throat infections; Mycobacterium avium complex (MAC), and, with other meds,
H. Pylori.
A tetracycline antibiotic used to treat pneumonia and other respiratory tract infections; Lyme; acne and other skin infections; infections of the genital, skin, and urinary systems; and anthrax (inhalation exposure). An antimycobacterial antibiotic used to treat tuberculosis (with other meds); Neisseria meningitidis infections in nose or throat prior to the exhibition of symptoms and to prevent infection of others. A fluoroquinolones antibiotic used to treat or prevent anthrax (possible bioweapon); urinary tract infections; A serine proteinase from Bacillus subtilis, used to treat cardiovascular diseases and other diseases, including those where it is useful to reduce blood clotting. A specialized enzyme that disrupts the biofilm matrix embedding potential gastrointestinal pathogens.
Itraconazole Diflucan (Fluconazole)
Bicillin Metronidazole (Flagyl) Ivermectin
A triazole antifungal used to treat infections that start in the lungs and can spread through the body, as well as nail fungus; oral yeast; and fever-causing fungal infections. A triazole antifungal used to treat infections that start in the lungs and can spread through the body, as well as to treat or prevent yeast infections and to treat meningitis. A bactericidal antibiotic from the penicillin class with prolonged action, used for infectious and inflammatory diseases caused by microorganisms susceptible to the drug: syphilis, yaws, spotted disease, rheumatism, scarlet fever, wound infections, etc.  A nitroimidazole antibiotic used to eliminates bacteria and other microorganisms that cause infections of the reproductive system, gastrointestinal tract, skin, vagina  [to be added]

Latest F-Zyme Formula – Ingredients List

July 12, 2012 By: kajay Category: Best Practices, F-Zymes

Enzpire Capsules

These are working great for me when I can stand to take two daily. Have to alternate with days when I only take one as a side effect is diarrhea! I am glad I opted to follow a friend of mine and experiment with taking the enzymes orally. Now I no longer have to fill my own capsules, plus Gordon has developed a specific formula for them, and here it is:


  • Cellulase
  • Protease
  • Amylase
  • Serrapeptidasem
  • Disodium salt

Enzpire Spray Powder

The Enzpire loose powder has the same ingredients except instead of Disodium Salt, it substitutes Sodium Carbonate.


Powders have their own chemical properties that make them anything from relatively harmless to deadly, however, even powders with neutral or beneficial properties should not be inhaled, as the small crystalline (sharp edged) particles are not good for lung tissue and can cause breathing problems.

Gordon’s Website

Enzyme Recipe

July 12, 2012 By: kajay Category: - Peppermint Enzyme Recipe, Best Practices

One poster had [critters] in her lungs terribly. She breathed peppermint enzyme cleaner through a rubber hose and breathed thru the tube with a little enzyme cleaner in it, she did it for about 10 mins daily and it stopped the bug and she could breathe fine in 2-3 days she said ..
When a friend of mine drank some by mistake, he called poison control. “That’s ok,” they said, “It’s only soap, peppermint, and protease enzyme–meat tenderizer.” He was relieved, and did not get sick.


1. dish soap
2. water
3. peppermint
4. protease meat tenderizer enzyme
That’s it. The longer it sits, the more potent it gets. If you are in a hurry, you can buy it at It is expensive, but wonderful. A gallon (over $100) goes a long way.

Lice Combing – Not Just for Lice

June 04, 2012 By: kajay Category: Best Practices, Hair, Scalp

Want to relieve some of your scalp and back of neck issues, and probably a lot more?

Consider combing. Lice combing, that is. But with a difference: you won’t ALWAYS need to look under a microscope at everything you remove from your scalp. . Just get the darn things out, wash your hair and sink, soak your comb in anything that will hold the business end under water, and squirt some Dawn in with it.

While you are combing you will need to clean the teeth of the comb after EVERY time you pull it through your hair. Use an old dish scrubber brush (with long handle) so the bristles have been broken in. New is okay, but in this case, old I find is better. Always draw the comb the wrong way. Close your eyes when you remove the comb from your hair and when you are scribbing the The difference is, if you are going to do this over the long haul, a lice comb might not be economical because they are generally designed for use only over a limited time. Then they break or rust pretty reliably. The only exceptions have been the ones I didn’t like, so I was back to flea combs, which are made to last, and they do. What to look for: the closest teeth (highest teeth count per inch) and a handle with a rubber grip or completely rubber. Your hands will be wet – you will need the grip. You can usually buy one that will work just fine at a pet or discount department store. Hold out for the rubber grip, don’t waste your time on one without that. When cleaning the flea comb with the dish brush, run the water low so that the comb does not bounce the contaminated water into your eyes.

Castor Oil Heat Pack

May 31, 2012 By: kajay Category: Best Practices, Tips

Here is a great recipe I received from a fellow group member today:

I just use an old cotton t shirt (no need to buy flannel)
Cut a large square
Fold in two
Put liberal amount caster oil n lavender oil on to it
Then put onto area
Cover with clear plastic bag
Then towel
Lie down at least an hour
Try to rest
Hope helps x

Someone asked X to confirm cotton tee vs flannel. X replied:

I would use the same tshirt many times
Re applying the caster oil n lavender every time you use it.
Make sure hof water bottle just right temperature over the towel
N enjoy!
I like with soft music
Close eyes!:-)

Thanks, X!!!

Mom Hopeful Rife will Help Son Beat Lyme

May 30, 2012 By: kajay Category: Best Practices, Rife, Supplements

One mother of a very sick son writes–

“I just purchased the DP100 Rife Machine, and it will arrive in about 2 weeks. My name is Mimi and my son, Mark (13) has

  • Lyme
  • Major gut dysfunctionality with every malabsorption, overgrowth, intolerance, and sensitivity problem that exists
  • Dead bone lesions in his ankles
  • Joint pain
  • Headaches
  • Horrible acne that started when we started killing Lyme

He’s been sick for years, but he is getting better. For some time he couldn’t tolerate even vitamins and minerals without a reaction. It took a year to slowly build up nutrients, but now he can tolerate many. What we’ve been doing is…


Colloidal Silver and Sinusitis

May 27, 2012 By: kajay Category: Best Practices, Colloidal Silver

One poster today reported replacing saline solution in nasal spray bottle with colloidal silver.

Hey. Could be worth a shot.

Note: One respondent reported this irritates her sinuses, so this isn’t for everyone.

Wanda’s One-Two Punch: ASYRA + RIFE

May 10, 2012 By: kajay Category: Best Practices, Rife, Tools, Wanda

Wanda is a member of a Yahoo group that focuses on sharing information about electronic methods of treating Lyme Disease. Wanda gave me permission to share her letter and her first name. Thank you, Wanda, for this great post.

Before I go farther, I want to make the usual disclaimer that nothing here is intended as, nor should be construed as, medical advice. This is just a personal testimonial, with technical details and resources. I have thrown in a few definitions and links.

The ASYRA and Rife technologies and their use are considered by some to be quackery. Each person who reads this must decide for themselves if that is true or not, and what course to pursue. Wanda wrote this post for a group whose focus is the use of Rife technology, so she did not have to say that. Where I thought you might be confused by its omission, I have added that information.

ASYRA is defined at as ‘computerized metaphysical health dowsing’ or a form of computerized electro dermal screening, or CEDS


Scott’s Lyme Resources – a Labor of Love

May 01, 2012 By: kajay Category: Best Practices, Lyme, Rife, Scott

Scott has collected articles, posts, news etc and organized them into searchable folders and sub folders. He offers the results of his labor of love free for you to download, or he will ship you a copy of the CD. For more information or to download Scott’s material, go to

Scott also refers you to the Lyme-Rife Yahoo group, which can be found at It is a discussion group for those fighting Lyme Disease with Rife and other electronic technologies.

Protection and Camouflage

April 29, 2012 By: kajay Category: Best Practices, Clothes

No Fibers








When I first began looking through a microscope, I was finding only the two creatures I now believe to be springtails and feather-winged beetles. I cannot swear to this identification. I am not a scientist. I can only say that the photographs I took matched those of photos taken by others and identified in these ways.

Later I began to find the fibrous critters, and at first I thought the fibers were legs. They are not. The gray fibers seem to serve two purposes.


Morgellons organisms covered with fibers are hard, and feel like irregular grains of salt. Without fibers, the same organisms feel soft. The fibers, when present, serve a protective role.


“When we see leaf-eating insects green, and bark-feeders mottled-grey; the alpine ptarmigan white in winter, the red-grouse the colour of heather, and the black-grouse that of peaty earth, we must believe that these tints are of service to these birds and insects in preserving them from danger.” — Darwin, Origin of Species, 1859.

Morgellons uses two primary forms of camouflage, mimesis and mimicry, to avoid detection.

Mimesis, also called masquerading, makes an organism resemble something of no interest.

Mimicry makes it resemble something poisonous or distasteful.  Morgellons are often, and understandably, misidentified as lint. Lint is both uninteresting and distasteful.

A2’s Protocol

March 08, 2012 By: kajay Category: A2, Best Practices, Members' Best Practices, Procedures, Products, Tips

What worked (bottom line up front):

Enviro: Diatomaceous Earth, 70% Isopropyl Alcohol, Lysol Complete Clean, bagless vacuum cleaner

Laundry: Lysol Complete Clean, jumbo sealable plastic bags,

Body: 70% Isopropyl Alcohol, Sulfur soap and foam bath, tick repellent, Vicks Vapo Rub

Internal: Sulfur caps, Itraconazole, Doxycycline, Valerian Root

Scalp: White vinegar


I am a 50 year old female German resident.

The horror started in July 2009 with a bird’s nest on top of the flat roof of my office building. After the birds fled the nest, the mites started getting in through the windows, crawling up my legs and biting my thighs. In 2010, an entomologist at the University in Dusseldorf diagnosed me with a blood-sucking mite.


D’s Protocol

March 07, 2012 By: kajay Category: Best Practices, D, Members' Best Practices, Tips


Body:  Gordon’s Enzpire (F-8), Dawn, Vicks Vapo Rub, Benzoyl Peroxide, Neosporin, Kleen Green

Enviro:  Suspend SC/Onslaught, Nylar, Kleen Green, Hotshot Foggers, Clorox, Evercare Floor and Lint Rollers

Internal:  Gordon’s Enzyme Capsules, Lufenuron, Ivermectin, Doxycycline, Albendazole, Mebendazole

Laundry: Arm and Hammer Laundry Detergent, Borax, Ammonia

Details as of March 2012

I have tried most of the things suggested on F1C and over the last 4 years.  On this I have only included what I have continued to use and was effective for me.  If you have any questions, don’t hesitate to ask – I am not as detailed as you are.  Hopefully I have thought of everything that was helpful.

F-8 (Skin, Internal) – I am still getting bites on my back and scalp despite being on F-8 spray and capsules for at least a month and before that, on F-6 spray for about 6 weeks The number of critters has diminished greatly in number and in size – micro!

Lufenuron (Internal) – Prior to F-6, I did use a full round of Lufenuron (CandidaAway) but…



February 12, 2012 By: kajay Category: Best Practices, Herx, Ivermectin

The following information is culled from advice and reports from a friend who has benefitted from taking Ivermectin and claims to be free of parasites. I have just started with Durvet (mentioned below) and will provide my own results as I observe them. As always, this information is NOT medical advice. It is a first- and second-hand report of actions and apparent effects. Unlike the person who sent me this, I am also using F-6. Please see my separate reports on that. Here is what my friend said about Ivermectin:

APPARENT EFFECTS – My friend says the Ivermectin evidently killed her parasites in place rather than causing a herx/purge.

METHOD – She tried Ivermectin pills first, found horse paste gel more effective. She said Durvet apple-flavored gel tastes better and is easy to push up in the syringe and swallow the gel like a pill. This is how I have also been using it. We both take the Ivermectin by pushing the paste/gel out onto a finger, then swallowing it with some water, like a pill. That way, we don’t have to taste it.


Chin Up/Down Tools

February 11, 2012 By: kajay Category: Baths, Best Practices, F-Zymes, Skin, Tools

Parasites – is it just me, or do they naturally gravitate to the warmest, friendliest place in their world: MY HEAD.

Early on I was still shampooing in the shower, and dodging nasty bites as I washed them out of my hair. My first trick was lathering up top-down, then rinsing top-down, turning around under the water till the lather was off, and then hopping out of the shower. I’ve learned a thing or two since then. What do I recommend that you might not find on the internet (or you might)?

I have saved myself from much worse contamination by using the kitchen sink for everything from the neck up, covering my hair, and THEN showering the rest of me. Once I am done with my hair, it remains covered until it is time to get ready for work the next morning. Failure to follow this simple rule has cost me many miserable hours. So, in extreme detail, here is my nightly routine.

Note: My procedure has varied little over the years, only the chemicals have changed.



Safely Social, Part 3

January 13, 2012 By: kajay Category: Best Practices, Safely Social

How do I avoid transmitting this disease to others without giving up a social life? Obviously compromises are in order. Here are the ones I have made, and they seem to be working for me because I have been sick with this disease for a while with no known transmission to others. So far we have covered social life, family, handshakes, hugs, and towels. Today we will cover camouflaging clothing, workspaces, keyboards, and vacuuming.

NOTE: Since I originally published this article, my mom grew very ill and I had to be with her at times of greater shedding, times I would normally remain home, work on my computer job, and stay away from others. One of my brothers also spent a lot of time with our mother and just before she died she finally admitted that the “age spots” on her arm came and went, and might be lesions. F-zymes quickly got rid of the lesions. When she made the decision to stop chemo in order to regain some quality of life for her remaining time, she also opted out of enzymatic therapy. Now my brother has started having lesions. The only plus is that they got it after Gordon developed the f-zymes. Does this invalidate the procedures in this article? NO. The procedures worked for a very long time, and did so as long as I was able to control my circumstances to some degree. They continue to work. Stuff happens, because we cannot control everything, but we can control A LOT.

Camouflage Clothing

When I am having a “sheddy” day, I go only where I have to. Seems cyclic, probably due to treatments. Some days I don’t see a single fleck on my clothes. On days when I am shedding heavily, I wear busy prints to hide it, and I roll with my lint roller frequently whenever I get a second alone (I keep one on my desk). When I am alone at home and want to remove what I shed throughout the day to reduce transmission from one part of my body to another, I wear white or black. No prints or muddy midtones. They show up as white on black, and as blue on white (sometimes pink or orange).

Workspace and Keyboard

If I have to submit a help desk ticket, before I do it, I go get the vacuum cleaner my boss bought me because I mentioned I had “allergies” and I vacuum my workspace thoroughly INCLUDING MY KEYBOARD. To clean my keyboard well between the keys, I use a table knife and pull it between the keys. Everyone just thinks I am a clean freak. I encourage that thought! That gets any debris that has fallen between the keys. Then I take the back, duller edge of the knife and use it to push a disinfectant cloth between the keys. Many people who get this get it from keyboards, so I am especially careful about them. I also vacuum the mouse and mouse pad thoroughly. And then I run the lint roller over my chair and vacuum any crevices I can’t reach. I spend no more than 5 minutes (my boss’s limit, isn’t that dumb?) and get it all done. I have it down. Then I put in my help desk ticket and can be as confident as is possible that I will not transmit this to our IT folks.


As far as vacuuming, once I have my entire home clean clean, I can maintain daily by vacuuming about a yard diameter circle – 3 feet – with my chair at the center. I do vacuum my bedroom more often, but I don’t have to put as much effort into the between days. For thorough vacuuming, I go once a week. If I had children crawling on the floor, I would vacuum the areas they like to crawl and where I spend time, daily, or I would remove myself and spend time away from them (tough decision).
Thanks for reading this series of articles about how to avoid transmitting this horrid disease to others. That you read it all says that you care about others enough to make the extra effort to protect them–without compromising your own anonymity.

Safely Social, Part 2

January 12, 2012 By: kajay Category: Best Practices, Safely Social

How do I avoid transmitting this disease to others without giving up a social life? Obviously compromises are in order. Here are the ones I have made, and they seem to be working for me because I have been sick with this disease for a while with no known transmission to others. Yesterday’s article covered “Social Life.” Today we will cover family, handshakes, huggs, and towels.


My husband gets infected from me but has gout and we think the uric acid kills them. So we sleep in separate rooms. I don’t miss his loud alarm clock anyway, and I stay up later, so this way we are not disturbing each other. When we get together, it is like a honeymoon (though the critters limit that too, but we are quite creative!)


I do not shake hands unless I have just sterilized AND SCRUBBED my hands. Usually I know ahead of time when that kind of thing is likely to occur and can run down the hall to the ladies room to prepare.

Hugged without Warning

When someone just plain pulls me over for a hug, I make sure I only meet their cheek with my cheek – no hair contact. If I can avoid the hug/kiss, I do. I will use any means. Usually, distraction works best. I pull back (if I have even a second to think) and say “Oh, I wanted to get your advice about something.” It doesn’t matter now lame what you say is. What people focus on is that you asked for their advice. Start with their name – that’ll stop most folks in their tracks. Then, ask them anything: “What do you think about ____?”  Because we are all subject to unexpected contact, I cannot emphasize enough the importance of lice combing daily (even though I have morg, not lice); thoroughly scrubbing every inch of skin, especially head, ears, and hands, daily (at least); and remaining aware at all times that it is MY responsibility to prevent transmission. No one else’s. No, I did not ask for this disease, but I have the advantage, and burden, of knowing that I have it. Others are innocent. They did not give this to me. Taking every precaution is the right thing to do. If nothing else, I remind myself that if I get rid of this, I could get it back from someone I gave it to. I want to keep up my no transmit record.


I put a roll of paper towels in my mom’s house so I never have to use her towels. I put paper on the seat and also use a disinfectant cloth on the toilet seat when I am done.

Check back tomorrow for more on protecting others through simple preventive measures.

Safely Social, Part 1

January 11, 2012 By: kajay Category: Best Practices, F-Zymes, Indoors, Morgellons, Psychological Effects, Safely Social

How do I avoid transmitting this disease to others without giving up a social life? Obviously compromises are in order. Here are the ones I have made, and they seem to be working for me because I have been sick with this disease for a while with no known transmission to others:

Social Life

There is no reason to forego a social life. What I do is graciously accept invitations to people’s homes (but never invite them to mine no matter how many times I have to change the subject) and then simply do not go. That is easier than declining while everyone is looking at me. Right! Instead, I meet people in public places that I know are vacuumed or mopped daily or more often in some cases.

I did stop attending a bible study because everyone hugged, all the time. Had I at the outset indicated that I preferred not to be hugged, it would have been accepted, but I did not want to explain why I was suddenly saying that after hugging freely for a couple of years. Simply simpler. I miss that group, they were wonderful, and of course I miss the hugs, but I am not short of friends or social life, I just have to have it on slightly different terms.

I did also choose to stop attending a church with upholstered bench seats. Fortunately it was not a church I had attended long and I realize that choice would be much more difficult for many of you. Instead, I found a small church with folding metal chairs. I can dash in discreetly after the service and swipe the one I used with a disinfecting cloth and no one is the wiser. If someone comes in, I’m there to pray, right?

Check back tomorrow for more on protecting others through simple preventive measures.

Isolate, Isolate

January 06, 2012 By: kajay Category: Best Practices, Kajay's Best, Lice combing, Morgellons

Is it just me or do parasites naturally gravitate to the warmest, friendliest place in their world: MY HEAD. Early on I was still shampooing in the shower, and dodging nasty bites as I washed them out of my hair. My first trick was lathering up top-down, then rinsing top-down, turning around under the water till the lather was off, and then hopping out of the shower. I’ve learned a thing or two since then. What do I recommend that you might not find on the internet (or you might)?


I have saved myself from much worse contamination by using the kitchen sink for everything from the neck up, covering my hair, and THEN showering the rest of me. Once I am done with my hair, it remains covered until it is time to get ready for work the next morning. Failure to follow this simple rule has cost me many miserable hours. So, in extreme detail, here is my nightly routine:


Vinyl Gloves

Use gloves. I prefer vinyl. They hold up longer than latex.

Runoff is Baaaad

Never let water run from hair onto face. EVER. What to use is another discussion. How to comb, google it. Lice comb. Every day, twice on bad days. I use a very very fine-toothed metal comb. There are a couple sold on the internet that work fine. I pull the comb through once then scrub gently with a dish scrubbing brush, and repeat till no matter where I comb, or in what direction, the comb is clean. I soak comb and dish brush overnight in water with something unfriendly to critters. I think it is the overnight part that really does the trick. I soak them in the top of a 100-count computer disk spindle. Works just fine. I keep a couple in the shower to soak those implements, too.

Eye-Saving Technique

Here is a tip that may save your eyes, literally. When you are combing, make sure you do not run the water in the sink very fast. You want to avoid splashing it in your eyes. From the moment you pick up your scrub brush to clean your “harvest” out of your comb, your eyes should be closed, and you should be operating by touch.

Scrub slowly to avoid the spring action that occurs if you are brushing hard and the brush suddenly goes off the comb. Where and how you are standing, that would almost certainly fill your eyes with contaminated water.

Eye Emergency!!!

Should you get “hair water” in your eyes, immediately put on clean gloves. Drop everything else and do it at once. Gently splash body temp water (or cooler) on your eyes. Keep your face down so the water will run off and out of your eyes. Blot with a clean paper towel (I assume that is what you would use, too). Repeat a couple of times. Then put any kind of eye drops in your eye from the end that did NOT get splashed. Then bend your head over again, leave the drops in a moment, then blot. Lift your head only to add more drops. Do this about three times also. That SHOULD be enough. If you are not sure, or if you feel anything, continue to attack with the eye drops. Sometimes I will use a clean cotton swab and soak it with the eye drops or some kind of eye wash and clean my lashes and scrub my tear duct, which is where my critters seem to congregate. This whole emergency procedure will take you about 3 minutes but it is critical. When you are comfortable doing so, resume combing.

Nighttime Hair Treatment

When I finish combing, I dry my hair and coat it with something oily to retard activity. Coconut oil, a glossing oil, whatever you like. I look for oils that contain some kind of antiparasitic. There are lots of products in the beauty supply houses that have useful mixes. Many contain sulphur, for example, and some contain linalool or limonene. The addition of a wax such as beeswax or a microcrystalline wax is a plus. A bit of vaseline is useful if you don’t mind. There are lots of reasons to mind about using petroleum and other inherently unsafe products, but use of anything is always a personal choice based on considerations such as finances and level of desperation.

Hair Wrap

I like to cover my hair before I shower and go to bed. When my hair is dry but for the oils, I wrap it in paper towels, put a wig cap (2 for 99 cents at my local wig stores), and then put a shower cap on.



Shower Floor

Two 1-gallon jugs with pumps (recycled Flea Shampoo and pumps from, one with pure blue Dawn in it (aka my shower gel), and the other with a 1 part Dawn to 20 parts water mixture (in case I feel a bite from the shower floor). I keep a large funnel behind the back jug to refill these.

One plastic canister (floor of shower enclosure) with a dilute of Dawn or Arm and Hammer liquid laundry detergent. In here, I soak my foot brush (another dish scrubber – the long handles save my back), a callus scrubber, and my razor.

Shower Seat

Two plastic canisters (shower seat). One is for clean, unused implements. Used/dirty ones go in the other canister. When I step in the shower, I move them all to the canister with the clean implements.


I have two big scrubbies, a rough cloth back scrubber, 3 small utility brushes I use for spot scrubbing, and a large sponge with a non-stick scrubbing surface on one side.


I buy shop towels. They are between the size of a wash cloth and a very small hand towel, but one is enough to get the bulk of the moisture off. I hang one over the top of the enclosure door.

Sleep Aid

I take a part of a sleeping pill (I like Seroquel, and I generally take half of the weakest, so about 50 mg). I make sure I am within 30 minutes of bed before I take it, because in 30 minutes, I will be horizontal – somewhere.

Cell Phone

Oh. Here’s where I use an antibacterial wipe to clean my sleek cell phone (sleek means less critters, so touchscreen, touchscreen, touchscreen). Every night. Then it is sitting there clean waiting when I get out of the shower.

Shower Shoes

I wear Reebok molded plastic slides (in lime green, a girl’s gotta have some fun) in the shower. They are similar to Croc’s but without the straps. I would wear them even if I didn’t have this – love ’em.

Scrub a Dub

Then I get in the shower and immediately scrub my feet with Dawn. This prevents fallout bites. I scrub away and put all used scrubbies in the contaminated canister.

Coconut Oil

I keep two plastic Lu Ann’s (Walmart, quart size) jars of coconut oil on the shower seat next to the canisters (yes, it’s crowded!) One has coconut oil, the other is for mixing. I also have one of those 8 ounce bottles with a pointed dispenser top like the ones that come with hair coloring.

After I rinse off the Dawn, I put Dawn in my hands and spray it around the shower, starting again with my feet for the same reason. Then I turn the water on its hottest setting and fill the mixing jar 3/4 full. I keep a stainless steel soup spoon in the jar with the coconut oil. I spoon some of that into the jar with the hot water and stir to melt the coconut oil.

I use a smaller funnel to fill the dispenser bottle, and drizzle the coconut oil on my skin, then blot some of the water off before I step out.

On the way to the bedroom, I grab my clean phone, and ditch the wet shower cap. Once in the bedroom I hook up my phone to the charger (or I’ll forget and it is my alarm clock), pull off any of the paper towel that got wet around the edges, and put a sterilized cotton kerchief on over the wig cap. I fold a corner one-third over and put the center of the fold at the nape of my neck. I tie in front once, pull the point through and wrap it around one of the tie ends, then make the second tie. Voila. Nice and neat.

I keep clean underwear, socks, and pajamas in sealed bins (sound familiar) off the floor. I also keep a container of clean socks by the bed.

I oil up some more, put specific chemicals (okay, some of it anti-wrinkle, sue me!) on my body as needed, antifungal on my feet, and dress. I change the disposable sheets on my bed and make sure all my open bins are closed. I get on the bed and immediately change my socks. This USUALLY eliminates any crawling in the foot area. My PJs, by the way, cover me completely. I add vinyl gloves in case I decide to rub my contaminated hand on my face or in my eyes during the night. I use an antifungal as a hand cream for this reason. That helps.

About then the Seroquel kicks in, turns off my skin and my brain, zzzzzzzzz


January 02, 2012 By: kajay Category: Best Practices, F-Zymes, Morgellons

It is important to keep your hands and face scrubbed and to wash them as often as possible. Use of a heavy hand cream or lotion often reduces activity.

Keyboards can be cleaned various ways. The most effective is to vacuum them with the dusting attachment of a vacuum cleaner. You can run your vac’s accessories in the dishwasher (I wouldn’t run them with the dishes :-)

You can also run a disinfectant wipe between the keys with a steak knife, or you can cut up a lint roller sheet and use the pieces to clean between the keys.

However, the best way to avoid contaminating and becoming contaminated from a keyboard is to wear disposable vinyl gloves. Why vinyl? Because latex gloves stretch, which makes typing difficult, and they fall apart quickly. Vinyl gloves are thus more economical (last longer) and sterile (broken gloves allow contaminant transfer).