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Archive for the ‘Best Practices’

What Works4Me, Part 5

December 30, 2011 By: kajay Category: Best Practices, Showers, Skin, Tools

Cell Phone

On the way to the shower, I use a disinfectant wipe on my phone. I take it out of the case and wipe down the case itself and the sides and back of the phone. I let them dry while I shower.

Chin Down (Shower)

I was getting bitten in the shower till I found these tricks:
  • I NEVER wash my face and hair in the shower. I do that in the kitchen or bathroom sink (see above)
  • I use two plastic canisters in the shower. One for clean scrubbies and brushes, the other for the ones I have used. I keep the canisters filled with clean water that has some Dawn in it.
  • As soon as I step into the shower (in my Crocs) I dip two old scrubbies in one of the canisters and then hang up the two scrubbies on a hook I mounted near the shower head. This drips a Dawn solution slowly the whole time I shower, which reduces the ability of anything I scrub off of me from jumping right back on and taking a big chomp out of me.
  • I use my various scrubbies to get squeaky clean.
  • I get the water as hot as I can stand and “iron” my skin
  • I put some Dawn in my hands and spray it out and onto the shower enclosure walls. This also reduces biting the next time I shower.
  • I mix F-zymes in water (in an old plastic coconut oil jar), and drizzle it over my body. To reduce biting, I add Borax. To reduce itching from the borax, I add a pinch of Epsom Salts.
Thanks for reading. Be sure to add your comments!

What Works4Me, Part 4

December 29, 2011 By: kajay Category: Baths, Best Practices, Eyes, F-Zymes, Hair, Lice combing, Morgellons, Ordering, Skin

Preparing for Sleep: Chin Up (Sink)

Scalp

  • I have been lice combing almost every night for many years. When I miss a few nights, I get really bad head and face crawlies and worst problems all over. I use a regular rubber handled flea comb. They are durable and work well enough for my not so microscopic morgies. I start by applying an F-zyme solution and some dimethicone based hair conditioner, then I comb till the comb comes clean and then wash my hair twice with Dawn.

Eyes

  • I use eyelid scrubbies then rinse my eyes with tepid water, blot, repeat 3x or more. I do my eyes before the rest of my face because the smell of the chemicals helps keep any organisms on my face from running right into my eyes.

Face and Neck

  • I use a Buf Puf and scrub really well.

Hair

  • I apply conditioner, beefed up with a little (not coincidentally antiparasitic) castor oil for more conditioning for little $.
  • I wrap my hair with paper towels, secure them with a wig cap, and cover with a plastic shower cap.
Tomorrow night I will share the remaining bedtime rituals that help me sleep…

 

What Works4Me, Part 3

December 28, 2011 By: kajay Category: Best Practices, Clothes, F-Zymes, Morgellons

Clothes Spray

This helps reduce bites from “sheds,” that is, from anything that “falls out” of my scalp. In a quart spray bottle, I add 6 oz of Jeffers Pet’s Foot and Hoof Rot spray, 1/4 to 1/2 teaspoon of herbal insect repellent (I like Legacy Herbs), and fill with water.

Skin Treatment

This significantly reduces crawling and biting. I apply this from the neck down twice daily: once when I am dressing for work and again when I am getting ready for bed.
In a plastic milk pitcher, I use a large wire whisk to mix–
  • 3 1-quart bottles of Luster’s Pink Oil (original not light)
  • 1 tsp of Legacy Herbs Insect Repellent
  • 1/4 Cup of Jeffers Pet’s Foot and Hoof Rot spray
I pour this mixture into a single-serving, melamine pasta bowl. I scoop it out with both hands and can apply all over very quickly this way.
I apply to privates first then everywhere else (on my feet I first apply an antimicrobial).
Check back tomorrow  night for the life-saving techniques I have developed and used for years with any number of products.

Lymorg.com is now shipping the latest F-zyme formula available.

 

What Works4Me, Part 1

December 26, 2011 By: kajay Category: Best Practices, F-Zymes, Herx, Morgellons, Psychological Effects

Note to Newbies

I had this a long time before I knew what it was, and for many years before I discovered this group. You are going to get well before me because you have not had it as long. Hold onto that. I know you are hurt and angry and don’t know why this is happening to you or why no one will listen.
I have seen many sufferers with less time in the disease than I have, come and go. YOU CAN, TOO! But you can also reduce the discomfort we have all experienced while you get rid of the disease.
Check back tomorrow night to read the first of my articles about how I have made this horrible battle a little less horrible.

 

Slamming ‘Zymes Part 2

December 23, 2011 By: kajay Category: Best Practices, F-Zymes, Herx, Morgellons

The first formula I added to my bedtime internals was Interfase Plus from Klaire Labs (available at Amazon). This product is sold specifically as a chitinase. The contents of the capsules can also be dissolved in water and added to my spray, but work better as an internal treatment.

The second formula is Walmart’s Spring Valley brand of a product called “Probiotic Multi-Enzyme Digestive Formula.”

Neither of these two, when added alone, produce anything like what they did when I took both with F-8 at bedtime. On the days following my first two nights taking this combination of enzyme formulas, I had extremely heavy shedding of soft organic matter, very light in color, like softer feta cheese. They emerged as little blobs up to 1/8″ and were so thick that they filled the fibers inside my clothing. The texture of the blobs was like mushy feta cheese. Shedding outside my clothing was minimal, indicating that the enzyme triad affected my scalp, at least in that time frame, less than my trunk.

Read tomorrow night’s post to find out what I am doing that is bringing up large “albino” fiber critters – and how I’m keeping them from biting me on the way out!

Note: Lymorg.com seems to be offering F-6, but Gordon will actually ship you the latest F-zyme formula he has on hand at the time he receives your order.

Slamming ‘Zymes Part 1

December 20, 2011 By: kajay Category: Best Practices, F-Zymes, Herx, Morgellons

Gordon’s F-Zymes are getting more potent with each formula, and he has changed things up a bit by adding chitinase to F-8. The first night when I went to bed the strongest concentration was on my head. I think I reported in another post that it had me speeding all night–it was the strangest thing. I know there are NO stimulants in F-8. It wasn’t that. It was ACTIVITY – in my scalp, inside my head. Talk about freaked out. But I am still here. That only happened for a couple of nights. It doesn’t happen anymore. My scalp is not completely clear, but I feel like in those two nights things came out that I have not been able to reach before.

I got a handle on how much to use and the protocol that strikes a balance between doing nothing and off the chart unmanageable, and for me that consists of taking 3 to 5 double zero caps a night and, after showering with Dawn, drizzling F-8, borax, and a pinch of epsom salts. Last night I added bentonite clay to the drizzle and SEEM to be having fewer sheds today. Not sure if that is a good or bad thing. After I air dry (brrrrr, you know that feeling, right?) I added Pink Oil, which still, after a decade, helps me sooo much. Then I fell onto my disposable sheets with a half 100mg Seroquel in me and woke to my Verizon rooster alarm at 5:30 am.

Then I got adventurous and thought, since I am from a family known to push limits, why not see what THIS will do. THIS refers to stacking other enzymes on top of the F-8. I had two formulas on hand…

Read Friday’s post to learn what combination of F-8 and commercially and readily available enzyme formulas produced a feta cheese like substance to ooze from my pores, especially on the back of my neck and shoulders…

Note: Lymorg.com seems to be offering F-6, but Gordon will actually ship you the latest F-zyme formula he has on hand at the time he receives your order.

Bactrim for 3B Co-Infections

October 24, 2011 By: kajay Category: Best Practices, F-Zymes, Internal, Lyme, Morgellons

One poster at birdmitesorg posted that Bactrim can treat the following co-infections:

  • Babesia
  • Bartonella
  • Borrelia (Lyme)

She said that Bactrim , sulfamethoxazole and trimethoprim, is an antibiotic used to treat ear infections, urinary tract and other infections, is usually combined with an antibiotic cocktail, and that the Bactrim helped her a lot.

Cotton, Heat, and What to Treat

October 23, 2011 By: kajay Category: Best Practices, F-Zymes, Morgellons

Heat is good, I use Bill W’s technique in the shower of “ironing” my skin with the water as hot as I can stand.

I had to do this recovery thing backwards because it didn’t work to change everything out in my environment first (multiple times). I am having to get them out of me first, then I will go through the house.

After a few years of being cold and wet all the time (like a dog’s nose) I got sick of it and figured out that if I soaked my cotton sleepwear in ANYTHING for at least 24 hours, then wash normally and dry on high for 4 hours – it’s a hassle, but I have NO problem with cotton sleepwear or casual wear then.

I DO have a problem with acrylic and some polymers, and I once bought two shirts (same shirt, two colors) at TJ Maxx that had bioactive threads. Some of the fabric manufacturers created them to “keep fabric looking nice” (I have the article documenting this in my library, critterfiles. For my work clothes, since I must dress professionally, I get them dry cleaned.

Update on Linda G’s Story

October 20, 2011 By: lindag Category: Best Practices, F-Zymes, Linda (Lindag), Morgellons

I mentioned in my story that I do have Lyme Disease and coinfections, including Bartonella. I have started in the last month treating with my LLMD once again. I am taking Doxycycline and Rifampin for the Bartonella. Most likely I also have Babesia, but if I treat for that, it will have to be later. My body can only do so much. It turns out taking these two drugs is not an easy affair… as I am learning more it turns out that both drugs should not be taken when eating certain foods or taking certain health supplements. Nor should they be taken together. It has turned into a rather complicated affair just trying to figure out when during the day to take each of this to get the full value out of the medications. I am going to go to a support group meeting tonight in Oakland, so I am very interested in learning as much as I can about the whole process. I am especially interested in the statistic that 90% of the people with Morgellons also have Lyme Disease, and I am assuming coinfections as well. How much of what we have are the coinfections doing their part? Recently I am starting to grasp the idea that perhaps the Lyme and coinfections are attracting these organisms to us… essentially are we giant magnets for a variety of infestations, whether it be an actual bug, or bacteria, or fungi? It is unknown to me at present. But, even in the last few weeks I am feeling less crawling, biting, and no itching whatsoever. I know of people with Morgellons who have done every medication imaginable for Lyme Disease, who did not lose their lesions, etc. So maybe there is more to Morgellons than Lyme Disease and coinfections, but shouldn’t we at least treat these illnesses if we have them first and see what remains after that?

Petkeeping

September 28, 2011 By: kajay Category: Best Practices, F-Zymes, Morgellons, Pets, Skin

Okay, so you aren’t giving up your pets–NO WAY. You know or suspect they have this too. I get it. I pretreat all pet bedding with a permethrin + insect growth regulator + bitter apple chewing deterrent liquid. After a couple of months, my dogs tell me they want a new bed by shredding the cover off the existing one and distributing puffs of foam rubber or stuffing all over the place.

I wasn’t sure whether to caption this “At one point she would eat anything” or “She hates the critters as much as I do!

I keep Frontline on my dogs, bathe them weekly (no small task), plus we give them Sentinel.

If you have pets and have recovered from Morgellons, please comment to share how you — and they — recovered.

Ivermectin Update

September 25, 2011 By: kajay Category: Best Practices, F-Zymes, Internal, Morgellons, Ordering, Pets, Research, Skin, Supplements

Although initially I felt the Ivermectin paste was helping me, it just made me too sick to continue. It would be time to take it and I just couldn’t face the nausea, so I am again only on the F-products.

I don’t wish to imply that my reports of personal product use represents anything other than just that – reports of my own experience. If I am reporting another person’s story, the title of the post will make that clear.

If I posted only about one product, that would, if I were you, make you question my motives. I’m not doing that, though. I am reporting my story, telling you generally what I am doing and what happens when I do it. I am not asking your permission to do so, nor am I asking your approval of what I write. I hope that you will make your own decisions and factor in all of the information you find from many resources. I have never and will never ask you to take my personal reports as recommendations. They are not. They are reports. Only you can decide what is best for you, and only you are responsible for the consequences for your decisions, as I am for mine.

That said, I do believe that the F-products are a breakthrough. For this reason, and because I have been so frustrated trying to find all the products I use daily as a result of this disease, I set out to create a small online store. My intentions were to contact my own sources and see if they would let me link to the products I like on their websites (affiliate ads) or if they would allow me to outright sell the products on my website and have them dropship the products. I got everything set up but my life has changed in other ways and I just haven’t had time to follow up.

The F-products really stir the critters up and two things help me control surface biting by exiting critters: the main thing is a combination of a heavy oily lotion with an herbal insect repellent mixed in. Without this, all the critters who are pushed out daily, which is a lot of critters judging by the increase in exit spots, bite the fool out of me. Something that helps too, but that I could do without before the oily lotion, is neem leaf capsules @ two a day.

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Hollyjane’s Story

July 24, 2011 By: kajay Category: Best Practices, F-Zymes, Featured, Hollyjane, Internal, Ivermectin, Morgellons, Ordering, Research, Skin, Supplements

With Hollyjane’s permission, I am reposting her protocol. I also use Orange Plus as well as Benzoyl Peroxide. The Oxy Clean did not work for my laundry. I was not able to back off on the 24-hour soaking time (minimum) and 4 hour drying time until I began using Gordon’s F-Products.
 
The thing to remember, though, is that our infestations may not be identical, may have different vectors (which might also mean differences in the nature of our infestations), and that we ourselves and our environments are different. What works for Hollyjane might help you, and might not. That said, I have seen the chemical effects of Benzoyl Peroxide as it brings up anomalies – of many kinds – through the dermal layers to the surface, where they manifest like a burn, then peel and slough off. Unfortunately, the Benzoyl Peroxide is not appropriate for use in certain areas of the body, whereas I at least have had no problem using F-5 and F-6 in those places. Enough from me, here is Hollyjane’s protocol:
 

I wanted to share a few things that worked for me. I am at a place where I don’t have the mites on a continuing basis. I only have a problem when I encounter a specific few people in my life that are carriers of the mites. Then it may take me a few days to clear them out, but I do not have an infestation in my skin anymore.

FAITH

The first thing I did to start getting better was get right with God. Things did not improve for me until I did this!

PRODUCTS

Check to see if a product works: find a tiny bug, and apply the product. If the bug dies, the product works. If the bug lives, time to try a new product. The following products are tried and true! AND CHEAP!! Except for the BP, but it lasts a long time.

Oxy Clean–Use this in your laundry! It absolutely works! I know it sounds like its too easy, and it really is.  I spent $80 on a gallon of some crazy cleaner to treat laundry.  Oxy clean works better.  It even worked when i only had cold water.  So try it, just a scoop full for a large load.

Orange Plus–Buy the concentrate (only) in bulk at Ace hardware, and mix it in a stronger concentrate than it instructs you to. Use this as your main environmental spray, and you will notice relief very quickly. Also use it for mopping floors. I just pour some concentrate directly on my mop and go to work. So much cheaper than cedarcide, and much more effective!

Benzoyl Peroxide from danielkern.com–Used very lightly on wet skin after a shower and left on. Caution- will bleach clothes when wet, and makes skin sun sensitive.

Tea Tree Tingle Body Wash— From Trader Joe’s, used as a shampoo, and body wash works wonders! If you dont have access to Trader Joe’s, look up the essential oils and add those to regular shampoo.

Ozone generator–Used in my vehicle, it is the only thing that works for me in there, I have tried everything, and I mean EVERYTHING! Ozone generator is expensive too, but very worth it to me because I could have bought one three times over with the money I wasted on other things.

Ivermectin–[See separate report HERE].

CONCLUSION

I am at a place where I don’t have the mites on a continuing basis. I only have a problem when I encounter a specific few people in my life that are carriers of the mites. Then it may take me a few days to clear them out, but I do not have an infestation in my skin anymore.

Linda G’s Story

July 15, 2011 By: lindag Category: Best Practices, F-Zymes, Linda (Lindag), Morgellons, Supplements

While we probably have not spent quite as much money on Morgellons as some have, we nonetheless have spent most of our savings. We also had to cash out our investments to deal with the enormity of expenses on this condition we call Morgellons.

I still do not know exactly what transpired 3-1/2 years ago. Our whole house was infested with something that we could not see. It bit like nobody’s business! Even after disposing of 2/3 of what we owned, taking most of our furniture to the dump, tearing out wall-to-wall carpets, replacing floors, and on, and on, what it was, is a mystery still. At first, we thought it was birdmites only. The symptoms matched our own:

In the first year, I had large lesions or bites, mostly on my stomach. They got to the size of a quarter and a few scattered in various places on other parts of my body. My husband got bites too, but he was not bit as often or as badly as I was. I developed an allergy to their bites and the lesions would become very large and itchy. A biopsy by a dermatologist indicated that the bites were insect related.

I haven’t had anything like this for two years now, but the neurological symptoms to some degree are still with me. I still have fatigue that comes and goes. I have difficulty walking and often have pain in my legs, hips and feet.

In the 80′s, I did a lot of gardening. I took a course with the County Cooperative Extension and the University of California and got my Master Gardener certification. I wanted to do that full-time. I often visited botanical gardens and famous gardens in our area. I still love plants and nature. It was during the time when I was in the garden for hours that I got extremely sick.

Years later, I learned that I had Chronic Fatigue Syndrome and Fibromyalgia. My point in telling about this is that, during this time, one of my symptoms was a feeling in the scalp and under the skull like I had ants walking in my cranium itself. Whatever this was caused extreme loss of sense of balance and it was hard to be in a car for any distance because I would immediately start feeling nauseous, not to mention extreme pain all over my body. It was nearly impossible to go on with daily responsibilities of being a wife, mother and owning and taking care of a house.

I now believe that, also in the 80’s, I was struck with Lyme Disease. Then, no one thought about it much or knew what to test for, although I was given the usual battery of stool parasite tests. Nothing ever showed up in any test given. I am wondering now if the symptom I had was similar to a re-exposure of Lyme Disease in the last 3-1/2 years. Although I don’t know what the vector was 3-1/2 years ago, I believe I was re-infected again with Lyme Disease and so was my husband, who tested positive for Lyme as well.

I don’t know yet whether I will try F-5. Many of my symptoms are at a very low level. I may need to take F-5 or F-6 in the future, so it is a wait and see situation.

I’ve taken so many antibiotics, anti-parasitics, anti-fungals, herbals like Cat’s Claw (Samento), Teasel (which really helps with Lyme symptoms), Artemisinin, homeopathics, MMS, and many more. I am grateful to know that F-5 was produced by someone who cared enough to dedicate time and money to fill this tremendous need. I am hoping this turns out to be a cure for those of us with Morgellons. It really does give a huge dose of hope.

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Good News + New Use

July 14, 2011 By: kajay Category: Best Practices, F-Zymes, Morgellons

Report from Gordon, the inventor of the F-products that have now helped many morgellons sufferers recover from this deadly disease:

Soon the formula patent will be officially registered, which will be a big relief to me. Nevertheless, I expect many unscrupulous individuals to attempt to copy my discovery, but there are facts about it’s production they will never be able to duplicate. And, as many of you already know, I am working feverishly, around the clock to improve what I have already accomplished and will never give up until all Morgellons sufferers are completely free of all symptoms. As I write, a new, more enhanced formula is being tested in my kitchen laboratory.

Good news
Several users of my formula are now coming forward and proclaiming themselves to be virtually symptom free. I knew all along that this day would come, even though the misery of getting to this point seems like it takes the patience of Job. These individuals vary across the scale as to length of infestation and severity of symptoms. So, hang in there, and you too will be celebrating with me the beginning of your new life without Morgellons.
New Use
A new method of using F-5 has come to my attention. I have tested it personally and believe it can be a valuable adjunct to existing application methods. It is (gulp!) the enema or colonic. What it offers is a way to get higher levels of active ingredients into your body where the parasite is doing the most damage.*  As with any new measure, start slowly. If you decide to try this method, here are some tips that might help:
  1. Enema kits are available inexpensively at pharmacies or health food stores.
  2. Use the same proportion: 1 teaspoon productin 4 oz. water.
  3. Start with 2 cups warm water + 4 tsp product.
  4. If things go well, increase solution to 4 cups water + 8 tsp product, then 6 cups water + 4 Tbsp (12 tsp) product, at the most.
Once a week seems like the right amount of usage for this method. If you decide to try this method, by all means, let me know how it goes for you.
That’s all for now. Good luck and God Bless.
Gordon
Notes from Morjella:
  • Many medications are absorbed in the lower intestine. I wonder if anyone can help us understand for sure why this method is helping, whether it is for this reason or others.
  • Make sure you only do this when you have NO PLACE TO GO, lol!
  • 1 Tbsp = 3 tsp and note that a soup spoon contains only 2 tsp. Using measuring spoons helps reduce waste of the product.
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