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Archive for the ‘Safely Social’

Safely Social, Part 3

January 13, 2012 By: kajay Category: Best Practices, Safely Social

How do I avoid transmitting this disease to others without giving up a social life? Obviously compromises are in order. Here are the ones I have made, and they seem to be working for me because I have been sick with this disease for a while with no known transmission to others. So far we have covered social life, family, handshakes, hugs, and towels. Today we will cover camouflaging clothing, workspaces, keyboards, and vacuuming.

NOTE: Since I originally published this article, my mom grew very ill and I had to be with her at times of greater shedding, times I would normally remain home, work on my computer job, and stay away from others. One of my brothers also spent a lot of time with our mother and just before she died she finally admitted that the “age spots” on her arm came and went, and might be lesions. F-zymes quickly got rid of the lesions. When she made the decision to stop chemo in order to regain some quality of life for her remaining time, she also opted out of enzymatic therapy. Now my brother has started having lesions. The only plus is that they got it after Gordon developed the f-zymes. Does this invalidate the procedures in this article? NO. The procedures worked for a very long time, and did so as long as I was able to control my circumstances to some degree. They continue to work. Stuff happens, because we cannot control everything, but we can control A LOT.

Camouflage Clothing

When I am having a “sheddy” day, I go only where I have to. Seems cyclic, probably due to treatments. Some days I don’t see a single fleck on my clothes. On days when I am shedding heavily, I wear busy prints to hide it, and I roll with my lint roller frequently whenever I get a second alone (I keep one on my desk). When I am alone at home and want to remove what I shed throughout the day to reduce transmission from one part of my body to another, I wear white or black. No prints or muddy midtones. They show up as white on black, and as blue on white (sometimes pink or orange).

Workspace and Keyboard

If I have to submit a help desk ticket, before I do it, I go get the vacuum cleaner my boss bought me because I mentioned I had “allergies” and I vacuum my workspace thoroughly INCLUDING MY KEYBOARD. To clean my keyboard well between the keys, I use a table knife and pull it between the keys. Everyone just thinks I am a clean freak. I encourage that thought! That gets any debris that has fallen between the keys. Then I take the back, duller edge of the knife and use it to push a disinfectant cloth between the keys. Many people who get this get it from keyboards, so I am especially careful about them. I also vacuum the mouse and mouse pad thoroughly. And then I run the lint roller over my chair and vacuum any crevices I can’t reach. I spend no more than 5 minutes (my boss’s limit, isn’t that dumb?) and get it all done. I have it down. Then I put in my help desk ticket and can be as confident as is possible that I will not transmit this to our IT folks.

Vacuuming

As far as vacuuming, once I have my entire home clean clean, I can maintain daily by vacuuming about a yard diameter circle – 3 feet – with my chair at the center. I do vacuum my bedroom more often, but I don’t have to put as much effort into the between days. For thorough vacuuming, I go once a week. If I had children crawling on the floor, I would vacuum the areas they like to crawl and where I spend time, daily, or I would remove myself and spend time away from them (tough decision).
Thanks for reading this series of articles about how to avoid transmitting this horrid disease to others. That you read it all says that you care about others enough to make the extra effort to protect them–without compromising your own anonymity.

Safely Social, Part 2

January 12, 2012 By: kajay Category: Best Practices, Safely Social

How do I avoid transmitting this disease to others without giving up a social life? Obviously compromises are in order. Here are the ones I have made, and they seem to be working for me because I have been sick with this disease for a while with no known transmission to others. Yesterday’s article covered “Social Life.” Today we will cover family, handshakes, huggs, and towels.

Family

My husband gets infected from me but has gout and we think the uric acid kills them. So we sleep in separate rooms. I don’t miss his loud alarm clock anyway, and I stay up later, so this way we are not disturbing each other. When we get together, it is like a honeymoon (though the critters limit that too, but we are quite creative!)

Handshakes

I do not shake hands unless I have just sterilized AND SCRUBBED my hands. Usually I know ahead of time when that kind of thing is likely to occur and can run down the hall to the ladies room to prepare.

Hugged without Warning

When someone just plain pulls me over for a hug, I make sure I only meet their cheek with my cheek – no hair contact. If I can avoid the hug/kiss, I do. I will use any means. Usually, distraction works best. I pull back (if I have even a second to think) and say “Oh, I wanted to get your advice about something.” It doesn’t matter now lame what you say is. What people focus on is that you asked for their advice. Start with their name – that’ll stop most folks in their tracks. Then, ask them anything: “What do you think about ____?”  Because we are all subject to unexpected contact, I cannot emphasize enough the importance of lice combing daily (even though I have morg, not lice); thoroughly scrubbing every inch of skin, especially head, ears, and hands, daily (at least); and remaining aware at all times that it is MY responsibility to prevent transmission. No one else’s. No, I did not ask for this disease, but I have the advantage, and burden, of knowing that I have it. Others are innocent. They did not give this to me. Taking every precaution is the right thing to do. If nothing else, I remind myself that if I get rid of this, I could get it back from someone I gave it to. I want to keep up my no transmit record.

Towels

I put a roll of paper towels in my mom’s house so I never have to use her towels. I put paper on the seat and also use a disinfectant cloth on the toilet seat when I am done.

Check back tomorrow for more on protecting others through simple preventive measures.

Safely Social, Part 1

January 11, 2012 By: kajay Category: Best Practices, F-Zymes, Indoors, Morgellons, Psychological Effects, Safely Social

How do I avoid transmitting this disease to others without giving up a social life? Obviously compromises are in order. Here are the ones I have made, and they seem to be working for me because I have been sick with this disease for a while with no known transmission to others:

Social Life

There is no reason to forego a social life. What I do is graciously accept invitations to people’s homes (but never invite them to mine no matter how many times I have to change the subject) and then simply do not go. That is easier than declining while everyone is looking at me. Right! Instead, I meet people in public places that I know are vacuumed or mopped daily or more often in some cases.

I did stop attending a bible study because everyone hugged, all the time. Had I at the outset indicated that I preferred not to be hugged, it would have been accepted, but I did not want to explain why I was suddenly saying that after hugging freely for a couple of years. Simply simpler. I miss that group, they were wonderful, and of course I miss the hugs, but I am not short of friends or social life, I just have to have it on slightly different terms.

I did also choose to stop attending a church with upholstered bench seats. Fortunately it was not a church I had attended long and I realize that choice would be much more difficult for many of you. Instead, I found a small church with folding metal chairs. I can dash in discreetly after the service and swipe the one I used with a disinfecting cloth and no one is the wiser. If someone comes in, I’m there to pray, right?

Check back tomorrow for more on protecting others through simple preventive measures.