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Archive for the ‘Meds’

Lindag’s Protocol

October 23, 2012 By: kajay Category: Best Practices, Linda (Lindag), Meds, Members' Best Practices, Tips

Bottom line up front

Internal: Clarithromycin, Doxycycline, Rifampin, Ciprofloxacin, Nattokinase, Interfase, Itraconazole*

Details

Lindag reports that her LLMD has reshaped her treatment plan as follows. As always, remember, this is NOT medical advice. Do not try to construct and implement your own medical plan. It is vital for your LIFE that you involve a knowledgeable medical doctor. These are drugs and many have dangerous potential side effects. Remember: you must decide to outlive the bastards.

In addition to seeking medical advice before taking any of these medications, I also suggest that if you have not already identified several support groups online, that you do so now. You do not have to participate in them all. However, if you join them you will receive their emails.

As for the groups, many states have Lyme Yahoo groups and there are several whose scopes are not limited by state of residence. Join all of them you can and figure out what each specializes in. The best way to do this is to read the documentation they provide when you join. If they provide none, then read the group’s home page message and recent posts, and look to see if the groups have files and links posted. If you want the most benefit from each group, doing a little homework before jumping in goes a long way toward opening that door.

  • Mycoplasma – Clarithromycin
  • Bartonella – Doxy & Rifampin start again, add in Cipro
  • Biofilm – Nattokinase and Interfase

Also

  • Itraconazole
  • Formerly on Diflucan–didn’t seem to do much, but it is supposed to attack Lyme.
  • She said to stop Bicillin for now.
  • Just finished 10 days of Metronidazole (Flagyl).
  • If things don’t improve she will add Ivermectin (I’ve been on before) for FL1953.

* Here is a little info on each of these. For more info, click the name.

Clarithromycin
Doxycycline Rifampin Ciprofloxacin Nattokinase Interfase
A macrolide antibiotic used to treat mycoplasma; pneumonia; bronchitis; ear, sinus, skin, and throat infections; Mycobacterium avium complex (MAC), and, with other meds,
H. Pylori.
A tetracycline antibiotic used to treat pneumonia and other respiratory tract infections; Lyme; acne and other skin infections; infections of the genital, skin, and urinary systems; and anthrax (inhalation exposure). An antimycobacterial antibiotic used to treat tuberculosis (with other meds); Neisseria meningitidis infections in nose or throat prior to the exhibition of symptoms and to prevent infection of others. A fluoroquinolones antibiotic used to treat or prevent anthrax (possible bioweapon); urinary tract infections; A serine proteinase from Bacillus subtilis, used to treat cardiovascular diseases and other diseases, including those where it is useful to reduce blood clotting. A specialized enzyme that disrupts the biofilm matrix embedding potential gastrointestinal pathogens.
Itraconazole Diflucan (Fluconazole)
Bicillin Metronidazole (Flagyl) Ivermectin
A triazole antifungal used to treat infections that start in the lungs and can spread through the body, as well as nail fungus; oral yeast; and fever-causing fungal infections. A triazole antifungal used to treat infections that start in the lungs and can spread through the body, as well as to treat or prevent yeast infections and to treat meningitis. A bactericidal antibiotic from the penicillin class with prolonged action, used for infectious and inflammatory diseases caused by microorganisms susceptible to the drug: syphilis, yaws, spotted disease, rheumatism, scarlet fever, wound infections, etc.  A nitroimidazole antibiotic used to eliminates bacteria and other microorganisms that cause infections of the reproductive system, gastrointestinal tract, skin, vagina  [to be added]

Minocycline Q&A

May 21, 2012 By: kajay Category: Minocycline

After posting several times in various groups about my taking Minocycline, I received several emails asking for information about Minocycline. This gives me an opportunity to clarify a couple of points. I have included the contents of one such excellent email and will use it to answer the questions I have received:

Q: I was wondering about the minocycline. Have you already started to take this?

A: Yes. One month in.

Q: You are female, correct?

A: Yes.

Q: I have been unsuccessful in finding an MD to treat my Morgellons. However…

(more…)

LLMD First Visit April 2012

April 25, 2012 By: kajay Category: Lyme, Minocycline

I wish I had taped my office visit with my new Lyme literate MD (LLMD). I learned so much from him but cannot remember it all. Here is what I remember so far. I will follow up later and post results. My next office visit is scheduled for two months from now.

I. SYMPTOMS

A. LLMD asked what symptoms brought me to him:
  • Pruritis (skin issues including crawling, lesions, biting; possible causes – staph, yeast, mycoplasma, leprosy, others)
  • Night sweats (always a sign of infection; possible causes staph, tuberculosis)
  • Restless legs syndrome (related, I think)
  • Severe spasms in feet, sometimes traveling up legs to body — terrifying

B. LLMD asked me if these symptoms are or have been present:

  • Brain fog (no)
  • Headaches (no)
  • Chronic fatigue (no)
  • Muscular aches (no) or spasms (yes)
  • Overall aches (no)
  • Sinus issues (yes until F-5 Mar 2011)
  • Lesions (yes until F-5 Mar 2011)
  • Depression (yes, but not since 1997)
  • Bulls eye rash (Once in 90’s, again in 2009)

II. NEURO-MUSCULAR TESTS

A. Standing

  • He had me walk three different ways.
  • He had me stand and allow him to just observe my face (tells a doc a lot about us)
  • He held my shoulders and leaned my body in every direction, alternating directions to see my body’s neurological response.

B.  Sitting:

  • He had me push/pull with feet, quads, arms, shoulders etc.
  • He had me stick out my tongue and relax it, but I felt it jumping!
  • You have Twelfth Nerve Palsy, he said, and at that point he diagnosed Lyme.

III. CAUSES

A. Pruritis. Possible causes: Staph, yeast, mycoplasma, leprosy, others.
B. Night Sweats. 100% due to infection of some kind. Possible causes: Staph, yeast, mycoplasma, tuberculosis. I asked why Evening Primrose Oil (EPO) controls. He asked what form I take and told me EPO contains antibiotics and many other beneficial compounds with various properties, but said studies have not been done to break down what does what. He pointed out that though the EPO controls the symptoms, it does not cure the infection casing the night sweats.
C. Restless Legs Syndrome. I asked if RLS could be related to Lyme  or Morgellons. Can’t remember what he said, but I think it is. He said some/all co-infections would clear up with use of the Minocycline. Once I’m done with that, we will look and see what is left, and deal with that.
D. Severe Spasms in Feet. Same discussion and conclusion as for RLS. Seemed fine with my continuing to take bone supplement to control spasms, which seems to be tied to dosage levels of my RLS medicine, Requip, as well as to my level of hydration, as in, when I am well hydrated, the spasms occur less often.
E. Bulls Eye Rash. Occurs in only a small percentage of cases. I have had at least two, years apart.

IV. CO-INFECTIONS

Only remember discussing the ones I have seen discussed here. I know he covered others, though. Feels most will be addressed by the antibiotic he prescribed for the Lyme.
A.    Babesiosis. Does not believe I have this.
B.    Bartonella. Can’t remember if he thinks I might or might not have this.

V. ANTIBIOTICS

Lyme is an intracellular (within cell) disease, but most antibiotics do not work within cells, only outside them, and so will not touch Lyme.

VI. ABOUT LYME

  • 112 known varieties of Lyme, each with a unique set of outcomes. Many never know they have it. Others experience debilitating symptoms almost from the moment of the bite.
  • Turkey hunters sit against trees. More tick bites than they know about.
  • 20% of ticks carry Lyme – not just deer ticks. That means, for every five ticks that bite a turkey hunter, one carries Lyme.
  • 100% of turkey hunters will contract one of the varieties of Lyme, but many will never know (the lucky ones).
  • Patients previously diagnosed with delusory parasitosis but then treated for Lyme have gotten well from the Lyme regardless of their mental state.
  • Ticks, like snakes, are active most of the year, if not all.

VII.  DIAGNOSIS

  • Diagnosis of Twelfth Nerve Palsy confirmed I have Lyme.
  • Immune system healthy.

VIII. PRESCRIPTION

Minocycline 100mg oral capsule, one a day with food, without calcium. Take yogurt and or probiotics. He instructed me to get another chest x-ray (I do that annually anyway since we lost one of our beloved dobermans to histoplasmosis). He wants to rule out tuberculosis as the possible cause of the night sweats.

IX.  CONCLUSION

The most important thing my new LLMD told me today is that Lyme is curable. He said that once we clear up the infections associated with Lyme, that may take care of my other issues (Morg). The second most important one is that (and he smiled when he said it) I am definitely not crazy.That’s a relief :-)Will post again when I have more news.
Kajay