Morjella

The Magazine for Sufferers of Morg, Lyme and More
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History – and Hope

January 24, 2012 By: kajay Category: F-Zymes, Morgellons, Psychological Effects, Skin

I’m a turkey hunter. One day in May, in the late 80’s, I carried the cooling carcass of a large gobbler from the woods while its parasitic populace happily hopped onto me. After that, I just thought my house had developed an awful flea problem, so I bombed it, and bombed it. I didn’t know it was all about me.

In the late 90’s, a temp moved into my workspace for a month of training. She hinted about a nightmarish condition that had ruined her life. When she left the department, she also left me with a new parasite. I thought I had brought the “fleas” to work. After I requested a second pesticide treatment in my office, a longtime coworker discreetly told me what I had not realized before: I was the only person being bitten. That was difficult to process but explained everything. An email buddy suggested scabies and, as horrifying as that was, I was grateful to have a start point for my research.

I bought a portable microscope, found some great online resources (see links), upgraded to a digital microscope, started

  • A defunct website called livingwithcritters.com.
  • This blog.

Like many others, I went through the emotional phases that follow trauma, and for some time considered suicide.

My area docs responded about like everyone else’s. It turns out that a little article called Delusory Parasitosis, by Nancy Hinkle, is published in three key professional trade encyclopedias: medical, entomological, and pest control – just in case you wondered why they acted like that and said all those mean things.

Through frantic trial and error, I found products and protocols that made life bearable for me while I continued to seek a solution.

I adapted enough to continue working, learned to prevent transmission, averted brain fog (so far), and ducked lesions until 2010.  The Morgellons, or whatever this is, began really accelerating my aging in the past couple of years and I knew that though I had won many battles, I was losing the war.

The Lie of Delusory Parasitosis

December 24, 2011 By: kajay Category: Delusory Parasitosis, F-Zymes, Morgellons, Psychological Effects

Why is it so difficult to get a diagnosis of our condition? How we do not get a proper diagnosis I credit at least in small part to an article entitled Delusory Parasitosis written by Nancy Hinkle. Despite its (to us) obvious fallacies, the included table of symptoms (of DP) even today often blocks us from receiving help –  or even being taken seriously – by members of three key professions:
  • medical doctors
  • entomologists
  • pest control operators
Why has a two-page article so impacted – in a negative way – the lives of so many? Because the article appears in each of these professions’ trade encyclopedias and professional databases (I googled them). As a result, when these professionals get on their computers, log into their expensive trade software, and then punch in our symptoms, the search results tell them that it is all in our heads. A pat answer is what we get to a confusing, painful, terrifying condition, usually early in the disease when we are struggling just to figure out what is going on, how to get rid of it, and, worse yet, are realizing it isn’t as simple as a bottle of Rid or a tube of Eurax.
Like the strong among you, and this disease has definitely made me strong, I don’t know about you, I refused to let these obstacles keep me from doing absolutely everything I could to get over the disease and put it behind me. I had to stop the incessant ice pick bites, the crawling invasion of every part of my body. I got lucky. Even though I am still fighting the disease, I have learned to deal with the short-term effects while the battle rages on.
Over the first couple of years I pretty much stumbled onto these things that have allowed me a more humane existence in spite of the critters.
Newbies, check back tomorrow night for my first in a series of things that can help you survive the fight you have in front of you!