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Neem Oil, Lesions, and Nosy Coworkers

February 05, 2012 By: kajay Category: F-Zymes, Morgellons, Supplements

Update: Like seabuckthorn berry oil, the neem oil ceased, after a while, to control my lesions.

The seabuckthorn mostly controlled them my lesions, but stained everything it touched an intense orange. That was a bit hard to explain to my coworkers and friends, in addition to the odd oily odor.

I have found that I am NOT allergic to neem oil as I thought. The neem oil not only does not break me out as I remembered, but it turns out it has a complex nutty FRAGRANCE that I find very appealing. It also is less staining, though, obviously, still oily.

My routine is this, and it is gradually resolving my lesions. That is, it seems to prevent the formation of new ones, and it makes the old ones get crusty and flake off. Morning, lunch, after work, and bedtime:

  1. Apply neem oil to skin WELL beyond the affected area, starting with the unaffected area and ending with the contaminated area, to reduce likelihood of spreading.
  2. Rub it in, which causes a lot of the sand in the sandpaper skin around the lesions to “rub up.”
  3. Once a lot of them are loosened up, wash the same area again a couple more times.
  4. Pat dry with clean paper towels, again working from uncontaminated to contaminated areas.
  5. Coat liberally with more neem oil.
  6. If no gloves were worn during previous application, wash palms and apply fresh neem oil to them.

For me, once the moisture has dried through the oil, I put on vinyl gloves. Especially when I am tired, this helps prevent me from carelessly contaminating my eyes or face.

The neem oil is of course not a silver bullet. I do not know of any immediate cures. But it is extremely helpful. Right now when I look at my arms, I see fading lesions, smaller than the ones that preceded them. Until I began using the neem, I was once again desperate as the seabuckthorn oil had ceased to prevent new lesions.

All this said, I am taking five seabuckthorn oil capsules morning and night. I am not sure yet what their role is in the healing process, but I am afraid to stop to find out if they are helping!

So that I can continue this routine away from home, I bought a dropper bottle of neem oil, which I refill and keep in my purse. At lunchtime and after work I go into our large ladies room and remove my suit jacket, then proceed with my routine. People walk in on me regularly and of course are curious. I act as though it is natural and make them ask me what I am doing or what I am using :-)

The answer I have devised is the most effective one I have stumbled upon:

I tell them that I am taking a supplement. This is a word that often produces a glazed expression, which is my cue to create a diversion or, for them, an out. I’ve found that an upbeat comment like “I am LOVING this crisp cold weather!” or “Do you know who did those adorable holiday decorations in the lounge?” works best.

Most nod with relief and go away. For those that do not, I lead the conversation to babies, weddings, or holiday decorations. For women, any of these topics usually clinches my victory, and my coworker goes away happy, having forgotten that I am up to my elbows in the sink in the ladies room.

Safely Social, Part 1

January 11, 2012 By: kajay Category: Best Practices, F-Zymes, Indoors, Morgellons, Psychological Effects, Safely Social

How do I avoid transmitting this disease to others without giving up a social life? Obviously compromises are in order. Here are the ones I have made, and they seem to be working for me because I have been sick with this disease for a while with no known transmission to others:

Social Life

There is no reason to forego a social life. What I do is graciously accept invitations to people’s homes (but never invite them to mine no matter how many times I have to change the subject) and then simply do not go. That is easier than declining while everyone is looking at me. Right! Instead, I meet people in public places that I know are vacuumed or mopped daily or more often in some cases.

I did stop attending a bible study because everyone hugged, all the time. Had I at the outset indicated that I preferred not to be hugged, it would have been accepted, but I did not want to explain why I was suddenly saying that after hugging freely for a couple of years. Simply simpler. I miss that group, they were wonderful, and of course I miss the hugs, but I am not short of friends or social life, I just have to have it on slightly different terms.

I did also choose to stop attending a church with upholstered bench seats. Fortunately it was not a church I had attended long and I realize that choice would be much more difficult for many of you. Instead, I found a small church with folding metal chairs. I can dash in discreetly after the service and swipe the one I used with a disinfecting cloth and no one is the wiser. If someone comes in, I’m there to pray, right?

Check back tomorrow for more on protecting others through simple preventive measures.

Isolate, Isolate

January 06, 2012 By: kajay Category: Best Practices, Kajay's Best, Lice combing, Morgellons

Is it just me or do parasites naturally gravitate to the warmest, friendliest place in their world: MY HEAD. Early on I was still shampooing in the shower, and dodging nasty bites as I washed them out of my hair. My first trick was lathering up top-down, then rinsing top-down, turning around under the water till the lather was off, and then hopping out of the shower. I’ve learned a thing or two since then. What do I recommend that you might not find on the internet (or you might)?

ISOLATE!

I have saved myself from much worse contamination by using the kitchen sink for everything from the neck up, covering my hair, and THEN showering the rest of me. Once I am done with my hair, it remains covered until it is time to get ready for work the next morning. Failure to follow this simple rule has cost me many miserable hours. So, in extreme detail, here is my nightly routine:

FROM THE NECK UP (SINK)

Vinyl Gloves

Use gloves. I prefer vinyl. They hold up longer than latex.

Runoff is Baaaad

Never let water run from hair onto face. EVER. What to use is another discussion. How to comb, google it. Lice comb. Every day, twice on bad days. I use a very very fine-toothed metal comb. There are a couple sold on the internet that work fine. I pull the comb through once then scrub gently with a dish scrubbing brush, and repeat till no matter where I comb, or in what direction, the comb is clean. I soak comb and dish brush overnight in water with something unfriendly to critters. I think it is the overnight part that really does the trick. I soak them in the top of a 100-count computer disk spindle. Works just fine. I keep a couple in the shower to soak those implements, too.

Eye-Saving Technique

Here is a tip that may save your eyes, literally. When you are combing, make sure you do not run the water in the sink very fast. You want to avoid splashing it in your eyes. From the moment you pick up your scrub brush to clean your “harvest” out of your comb, your eyes should be closed, and you should be operating by touch.

Scrub slowly to avoid the spring action that occurs if you are brushing hard and the brush suddenly goes off the comb. Where and how you are standing, that would almost certainly fill your eyes with contaminated water.

Eye Emergency!!!

Should you get “hair water” in your eyes, immediately put on clean gloves. Drop everything else and do it at once. Gently splash body temp water (or cooler) on your eyes. Keep your face down so the water will run off and out of your eyes. Blot with a clean paper towel (I assume that is what you would use, too). Repeat a couple of times. Then put any kind of eye drops in your eye from the end that did NOT get splashed. Then bend your head over again, leave the drops in a moment, then blot. Lift your head only to add more drops. Do this about three times also. That SHOULD be enough. If you are not sure, or if you feel anything, continue to attack with the eye drops. Sometimes I will use a clean cotton swab and soak it with the eye drops or some kind of eye wash and clean my lashes and scrub my tear duct, which is where my critters seem to congregate. This whole emergency procedure will take you about 3 minutes but it is critical. When you are comfortable doing so, resume combing.

Nighttime Hair Treatment

When I finish combing, I dry my hair and coat it with something oily to retard activity. Coconut oil, a glossing oil, whatever you like. I look for oils that contain some kind of antiparasitic. There are lots of products in the beauty supply houses that have useful mixes. Many contain sulphur, for example, and some contain linalool or limonene. The addition of a wax such as beeswax or a microcrystalline wax is a plus. A bit of vaseline is useful if you don’t mind. There are lots of reasons to mind about using petroleum and other inherently unsafe products, but use of anything is always a personal choice based on considerations such as finances and level of desperation.

Hair Wrap

I like to cover my hair before I shower and go to bed. When my hair is dry but for the oils, I wrap it in paper towels, put a wig cap (2 for 99 cents at my local wig stores), and then put a shower cap on.

 

FROM THE NECK DOWN (SHOWER)

Shower Floor

Two 1-gallon jugs with pumps (recycled Flea Shampoo and pumps from Jefferspet.com), one with pure blue Dawn in it (aka my shower gel), and the other with a 1 part Dawn to 20 parts water mixture (in case I feel a bite from the shower floor). I keep a large funnel behind the back jug to refill these.

One plastic canister (floor of shower enclosure) with a dilute of Dawn or Arm and Hammer liquid laundry detergent. In here, I soak my foot brush (another dish scrubber – the long handles save my back), a callus scrubber, and my razor.

Shower Seat

Two plastic canisters (shower seat). One is for clean, unused implements. Used/dirty ones go in the other canister. When I step in the shower, I move them all to the canister with the clean implements.

Scrubbers

I have two big scrubbies, a rough cloth back scrubber, 3 small utility brushes I use for spot scrubbing, and a large sponge with a non-stick scrubbing surface on one side.

Towels

I buy shop towels. They are between the size of a wash cloth and a very small hand towel, but one is enough to get the bulk of the moisture off. I hang one over the top of the enclosure door.

Sleep Aid

I take a part of a sleeping pill (I like Seroquel, and I generally take half of the weakest, so about 50 mg). I make sure I am within 30 minutes of bed before I take it, because in 30 minutes, I will be horizontal – somewhere.

Cell Phone

Oh. Here’s where I use an antibacterial wipe to clean my sleek cell phone (sleek means less critters, so touchscreen, touchscreen, touchscreen). Every night. Then it is sitting there clean waiting when I get out of the shower.

Shower Shoes

I wear Reebok molded plastic slides (in lime green, a girl’s gotta have some fun) in the shower. They are similar to Croc’s but without the straps. I would wear them even if I didn’t have this – love ’em.

Scrub a Dub

Then I get in the shower and immediately scrub my feet with Dawn. This prevents fallout bites. I scrub away and put all used scrubbies in the contaminated canister.

Coconut Oil

I keep two plastic Lu Ann’s (Walmart, quart size) jars of coconut oil on the shower seat next to the canisters (yes, it’s crowded!) One has coconut oil, the other is for mixing. I also have one of those 8 ounce bottles with a pointed dispenser top like the ones that come with hair coloring.

After I rinse off the Dawn, I put Dawn in my hands and spray it around the shower, starting again with my feet for the same reason. Then I turn the water on its hottest setting and fill the mixing jar 3/4 full. I keep a stainless steel soup spoon in the jar with the coconut oil. I spoon some of that into the jar with the hot water and stir to melt the coconut oil.

I use a smaller funnel to fill the dispenser bottle, and drizzle the coconut oil on my skin, then blot some of the water off before I step out.

On the way to the bedroom, I grab my clean phone, and ditch the wet shower cap. Once in the bedroom I hook up my phone to the charger (or I’ll forget and it is my alarm clock), pull off any of the paper towel that got wet around the edges, and put a sterilized cotton kerchief on over the wig cap. I fold a corner one-third over and put the center of the fold at the nape of my neck. I tie in front once, pull the point through and wrap it around one of the tie ends, then make the second tie. Voila. Nice and neat.

I keep clean underwear, socks, and pajamas in sealed bins (sound familiar) off the floor. I also keep a container of clean socks by the bed.

I oil up some more, put specific chemicals (okay, some of it anti-wrinkle, sue me!) on my body as needed, antifungal on my feet, and dress. I change the disposable sheets on my bed and make sure all my open bins are closed. I get on the bed and immediately change my socks. This USUALLY eliminates any crawling in the foot area. My PJs, by the way, cover me completely. I add vinyl gloves in case I decide to rub my contaminated hand on my face or in my eyes during the night. I use an antifungal as a hand cream for this reason. That helps.

About then the Seroquel kicks in, turns off my skin and my brain, zzzzzzzzz